TeamStudy Privacy Policy

The TeamStudy app is a study that is part of the Football Players Health Study at Harvard University. The TeamStudy app research team knows you care how your information is used and shared. We take protecting your privacy very seriously. Please read the following to learn more about how we use and protect information collected through the TeamStudy app (the “app”).

By using the app, you acknowledge that you accept the practices and policies described in this Privacy Policy and as outlined in the Informed Consent process within the app.

What does this privacy policy cover?

This Privacy Policy covers our treatment of personally identifiable information (“Personal Information”) that we gather when you are accessing or using the app. This Privacy Policy does not apply to the practices of companies or institutions that we do not own or control, or to individuals that we do not employ or manage.

Your use of the app will allow you to provide us with Personal Information as outlined within the Informed Consent for the app. The app collects your Personal Information for the purposes of a research study being conducted by the Football Players Health Study at Harvard University. If you choose to use the app to provide us with any Personal Information, you must first review and electronically sign the Informed Consent form for the Study, which will be presented to you within the app.

We do not knowingly collect or solicit Personal Information from anyone under the age of 18, or knowingly allow such persons to register for the app without parental consent. If you are under 18, you must not attempt to register for the app and you must not send any information about yourself to us, including but not limited to your name, address, telephone number, or email address without parental consent. In the event that we learn that we have collected Personal Information from a person under age 18 without parental consent, we will delete that information. If you believe that we might have any information from or about a person under the age of 18, please contact us at teamstudy@footballplayershealth.harvard.edu.

What information does the app collect?

The app may obtain information from you in two ways. The first is information that you manually enter into the app (e.g., survey responses). The second is information that the app collects automatically about you from your device (e.g., phone) and/or wearable technology (e.g., wristwatch). The Informed Consent for the app will tell you what information the app will be collecting. You may choose not to provide us with certain information. Some items automatically collected will be under your control and you may choose whether or not to provide this information by disabling/enabling this feature (e.g., GPS location information). If you choose to share information through and with the app (e.g. the number of the steps that you have taken from the health app on your iPhone), once that information is collected through the TeamStudy app, it is covered by this privacy policy.

This app may also automatically receive technical information relating to your usage of the app such as your internet protocol address, operating system, device, features used, content viewed and downloaded, the dates and times of your interactions with the app and other information. We may use this information to understand, customize and improve user experience with the app and the Study. For example, we may engage analytics services to analyze this information in order to help us understand how visitors engage with and navigate the app, and how and when features within the app are used and by how many users. We do not use cookies, beacons or device fingerprinting.

Is personal information about me secure?

All information that is collected through the app will be sent to a secure data server run by Sage BioNetworks (“Sage”), a non-profit research organization. Sage will replace the direct identifiers (your name, email address, and date of birth) with a code to help protect your identity—Sage will encrypt the direct identifiers and store them separately. The coded, de-identified study data and consent forms will be transferred to a secure data repository at Harvard. Refer to your consent form to see how we handle your study data.

Access to the app on your smart device will be protected by a passcode you select after downloading the app. This will need to be entered every time you access the app. You should take steps to prevent unauthorized access to your account and Personal Information by selecting and protecting your credentials appropriately and limiting access to your smartdevice.

We endeavor to protect the privacy of the Personal Information we hold in our records, but we cannot guarantee complete security. Unauthorized entry or use, hardware or software failure, and other factors, may compromise the security of your Personal Information at any time.

The app may contain links to external websites. We are not responsible for the privacy policies and/or practices on websites that may be accessed through these links. When following a link to another website, you should read that website’s privacy policy and make sure that you agree with it and can abide by it.

Will the Football Players Health Study share any of the information it receives?

Except as described in this privacy policy, we will not sell, rent, lease, give away, disclose or share your Personal Information that we collect through the TeamStudy app to third parties without your consent.

We reserve the right to disclose information collected through the app as required by law, when we believe disclosure is necessary to comply with a regulatory requirement, judicial proceeding, court order, or legal process served on us, or to protect the safety, rights, or property of those involved in the Football Players Health Study.

As indicated in the informed consent form for the Study, we may share your coded study data (data without your name, date of birth, or email address) with Football Players Health Study research partners or with researchers as permitted by the Study.

The TeamStudy app may ask for specific permission to share your information with outside parties if you are a member of the general public. It is your choice whether to allow this sharing. Please review the consent form for the details of that sharing and refer to the Synapse privacy policy related to that sharing.

Please note that all information collected by the app will be processed in the United States regardless of your country of residence, and this may be done by the Football Players Health Study or another entity under contract with the Football Players Health Study.

What Personal Information can I access?

Within the app, you may be able to review and amend certain Personal Information. If you wish to access, rectify, delete or block any of the Personal information, you may contact us at teamstudy@footballplayershealth.harvard.edu

Please note that while any changes you make will be reflected in active user databases within a reasonable period of time, we may maintain a copy of all information you submit for backups, archiving, prevention of fraud and abuse, analytics, satisfaction of legal obligations, or where we otherwise reasonably believe that we have a legitimate reason to do so, as permitted by applicable law.

You can withdraw from the study at any time within the app by clicking on the “withdraw” link in your profile page. Please note that if you withdraw from TeamStudy, we will stop collecting new data from you via the app, but the coded study data that you have already provided will not be destroyed or deleted.

Changes to Our Privacy Policy

This privacy policy is effective as of March 16, 2016. We may change this privacy policy from time to time. Any changes will be posted on this page with an updated revision date. In the event that any changes to this privacy policy materially alter your rights or obligations under this privacy policy, we will make reasonable efforts to notify you of the change. For example, we may send a message to your email address, if we have one on file, or generate a pop-up or similar notification when you access the app for the first time after such material changes are made. Your continued use of the app after the revised privacy policy has become effective indicates that you have read, understood and agreed to the then-current version of this privacy policy.

Contact

If you have any questions, comments or requests regarding this privacy policy or our processing of your information, please contact: teamstudy@footballplayershealth.harvard.edu

The Football Players Health Study at Harvard University
10 Shattuck Street
Boston, MA 02115
United States